When I first became sick I thought the most important thing was getting a diagnosis, as if that would solve all my problems. I have been diagnosed With a few things over the years reflex neuovascular dystrophy, leaky gut syndrome, chronic fatigue syndrome and few others. These diagonosis’ are only symptoms of my actual illness. Over the years we have had so many questions and we have found only a few real answers. A genetic test showed us that I have severe metabolic and mitochondria dysfunction, but we still don’t know how to take control of the problems.
As my illness is continuing to get worse more answers are crucial in order to try and slow the progression of my illness. I don’t know if I will ever have a name or an official diagnosis, but I hope we will find more answers to all our questions.