Update : Another battle!

I know I haven’t updated much lately. I have been feeling pretty awful the past few weeks. I have had this post in my drafts for two weeks, and even writing has been hard for me. Sorry if this post has a lot of errors!

These past few weeks I have been starting to feel even worse than usual. I have been feeling weaker, extremely exhausted, every little thing is harder than usual. I having been having to sleep more during the day. My brain has been feeling more exhausted and heavy than usual. I have been having a hard time thinking, reading, writing, and even having a conversation sometimes. I have lost some weight, and overall my body has been very unstable. I have also noticed that when I sit in the outside in the sun, even for just a few minutes my oxygen drops really low.

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I got my results of my neurotransmitter test back, and there worse than they have ever been. None of them were in normal range, and they were all severe. I am barely making any epinephrine. Most of them changed drastically from the last time I tested them back in February. So many of my metabolic pathways are not working. My body is having an extremely difficult time processing just about everything. Lately my oxygen and sugar have been very unstable even when I am just sitting or laying down.

Something has to change soon. Lately my doctors have come with a plan to try to force and drive nutrition to help my oxygen, sugar, and for my DNA. In the past we haven’t been able to push my body because it has made me feel worse, but I have no choice now. I have to try something to open up pathways, to live. To have a better quality of life.

I am ready to live Not just survive.

I am very grateful I have doctors who take so much time to help me.

I would appreciate all your continued support and prayers. I have still have a tough road ahead.

Luke 1:37 – For with God nothing shall be impossible.

Philippians 4:13 – I can do all things through Christ which strengtheneth me.

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Metabolic pathways – diagnosis?

In biochemistry, a metabolic pathway is a series of chemical reactions occurring within a cell. In a pathway, the initial chemical (metabolite) is modified by a sequence of chemical reactions. These reactions are catalyzed by enzymes, where the product of one enzyme acts as the substrate for the next.

Even though I don’t have a official diagnosis I do know that the severe metabolic pathway dysfunction in my body is the main reason why I am chronically ill. Looking back now and how I didn’t really know anything for a few years isn’t as surprising because most MDs do not talk about the pathways and those problems did not show up on normal tests.

We have a few theories on what could have set these problems into motion. When I was a baby I had the chicken pox, and they became infected so I had to take an antibiotic to get rid of them. The virus most likely when dormant till I had mono when I was twelve. I don’t know if this started my illness, but it does make sense.

As we learn more about my illness, slowly some of the pieces are starting to fit together. Things are starting to make some more sense. Most of my symptoms are reacting to the dysfunctions. Most likely the instability of my musculoskeletal system, chronic inflammation, heavy metal toxicity, toxins, bacteria, inability to detox well, and many other symptoms.

In order to attempt to turn things around, and be able to function better we need to be able the repair my DNA with certain nutrition. The problem is trying to find a way to get the DNA, RNA building blocks. First, we have to through other pathways. The problem with that is that I have problems in almost every pathway. We have to go one step at a time, when we try to much at it usually creates more problems and sets us back a few steps. I have been trying a different treatment lately called the assert protocol in hopes to possibly open up some pathways.

This is only a brief explanation of my very complicated illness. I hope this information makes sense all of it may not be 100 percent accurate. I try to understand the information that my doctors explain to me, and the research that I do on my own the best that I can. This could be the closest thing to a official diagnosis I may ever get, and I think I am ok with that.

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