My Illness and Treatment

I have written about being in recovery, but I have never gone into much detail about what I found out, and what I have done to treat my illness.

Going to a chiropractic neurologist changed my life completely. Before I met him my illness was a extremely debilitating, the pain, and exhaustion were extreme. There was no escape from my illness. I could hardly sit up, my muscles hurt all the time. The pain was always there. My brain felt horrible, it was so heavy it felt liked a bowling bowl, every step I took felt awful. The list of symptoms I had seemed endless. I have been sick for seven years, but those symptoms had been that extreme for over two and half years. I was desperate for some relief.

They symptoms I needed help with the most were undiagnosed. I have had always had a hard time explaining the way my brain felt, other than it feeling heavy, foggy, and horrible. At first appointment with a balance test, and a gaze assessment we were able to find out so much about what was going on.

I will try to explain this the best I can. Here it goes…

The Vestibular System – The vestibular system includes the parts of the inner ear and brain that help control balance and eye movements. If the system is damaged by disease, aging, or injury, vestibular disorders can result.

Your brain is supposed to know where you are in space, and to keep you upright. It is supposed to automatic that your brain is aware of your surroundings.  When things go wrong with your vestibular system it create so many problems.

The vestibular system detects motion of the head in space and in turn generates reflexes that are crucial for our daily activities, such as stabilizing the visual axis (gaze) and maintaining head and body posture.

My vestibular system was broken. Every time I turned my head my brain was receiving the wrong messages. My brain didn’t know where I was in space. My brain would think that I was falling forward, and to stop me from falling my muscles would tense up really bad. My muscles were even tense when I was laying down. This also caused most of my other symptoms I was having. It was the reason for so much of my chronic pain.

Click here for more information about the human balance system, and here for more information about the symptoms of a vestibular disorder.

I also found out that I had Benign Paroxysmal Positional Vertigo (or BPPV).  My brain was dealing with vertigo 24/7. Even if I didn’t feel dizzy at times it was always there. I would get exhausted really quickly, and I have to to lay down. My brain adapted to the situation the best that it could. My brain felt the safest laying down, so it didn’t want me to get up and do much, or even sit up.

Benign Paroxysmal Positional Vertigo (or BPPV) is the most common cause of vertigo, a false sensation of spinning.

Click here for more information about BPPV.

My ability to hold my gaze was also broken. My eyes couldn’t even hold on a non moving target. This is where so much of my energy was being used.

When he told me what was going it started to make sense of how I was feeling. I could never describe what I feeling, and I never knew what going on with it. It was a good feeling to have someone explain to me what was going on, even without me providing a clear description of what was happening. Not having a diagnosis I always wondered

These doctors and their treatments need to be talked about more. Their treatments are amazing, and they can help so many people. I think what amazed me the most about their treatments is how pain less they are, and how little movement really needed to be done for me to feel better.

 Click here for information on Chiropractic Neurologists.

One of the first treatments started out with simple movements of my arms, and legs. I also did a lot of exercises to help BPPV (similar to the one below on the right). Over the next few weeks of this I could tell a big difference, standing, and walking were already becoming easier. My brain was getting better little by little. I also did a lot of eye exercises to help my gaze, and over time also helped me have more energy. I think what amazed me the most about their treatments is how pain less they are, and how little movement really needed to be done to help me to feel better.

I actually saw real progress.

BPPV Figure 2a.

 

Here is a little bit about what Chiropractic neurologists do:

These doctors and their treatments need to be talked about more. Their treatments are amazing, and they can help so many people.

Everything about my experiences with my doctor and treatment is different from anything treatment I have tried before. I actually see real progress, and improvement.

 Click Here to find a Chiropractic neurologist near you.

You can Contact me at heidijones095@yahoo.com or leave a comment here. If you think this could help you or someone you know in any way please, feel free to ask me any questions you may have.

In all the years I have been sick I am now on path I have never been on before. I am on a path of healing and recovery. Before I went to a chiropractic neurologist I was only surviving, now I am beginning to live.

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Road to Recovery

The road to recovery will not always be easy, but I will take it one day at a time, focusing on the moments I’ve dreamed about for so long. Amanda Linkhout

I have been continuing to make strides in my recovery. I am still seeing step by step improvements. This is the type of improvement I have always wanted to see.

Today I was able to do something I haven’t been able to do in a few years. I walked a mile. It was beautiful outside today, and I’m glad I got to enjoy it.

Right now, I am going to keep working on strengthening my muscles in my neck and back.

 One step at a time I am going to continue to make more improvements, and work towards getting better.

February 19th

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More Gifs!

Chronic illness gifs

Trying to talk to a doctor that doesn’t understand:

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when you pretend your doing better than you actually are:

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when your out somewhere and your feeling awful:

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All the obstacles you face when you have a chronic illness:

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When you are able to get a lot done during the day:

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When you are finally making some progress:

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Keep going:

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Climbing

 

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Things have changed.

Things are still changing.

One step at a time.

I feel like a different person.

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I’m Climbing up the from the bottom, and it feels amazing.

I am finally climbing up instead of falling back down.

This is the change I have always been looking for.

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Quote

Quotes!

“I can accept failure, everyone fails at something. But I can’t accept not trying.”- Michael Jordan

“You’re tough. Maybe you don’t feel like you are right now, but you are tough enough to get through this.” – unknown
“Don’t compare your chapter 1 to someone else’s chapter 20.”

“Everyday is a struggle, a painful process. But you either run away from it or face it. Sure, you have to fear oftentimes, but it’s when we deal with our issues up close then we’ll see how to back off or to face each day with it.” – unknown

Honestly

Every single aspect of living a chronic illness is hard to handle. Everything in your life becomes harder, all the things you used to take for granted don’t come easy anymore.

Sometimes my illness gets the better of me. Sometimes, I hate how hard it can be to hold it all together. I hate how it controlled my life for so long. I hate the pain it has created.

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After seven and half years of dealing with my illness I have learned that no matter what stage my illness has been in that none of them have been easy to handle, it is all difficult. Before I found my current treatment this past summer, my illness came with difficulty like I have never faced before. For about four years or so my life was filled with continuous struggles, difficult battles, and constant pain like I have never felt before. Not being able to escape my illness.

There were so many days that I felt like I don’t know how I was supposed to handle everything. There were so many days I didn’t know how I could handle the same struggles with illness everyday. Everyday I would wake up and the fight was always there. There were so many times when I felt like I had hit my breaking point. All that I have wanted for so long is to feel better.

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But before my illness became so bad I always believed that I could feel better, and I knew I would try my hardest, and I would never quit. Since I have never had an official diagnosis for all of my problems, than no one could really tell me that I could never get better.

For a long time I never really wanted to admit that I couldn’t handle all this. At times it felt as if I was pretending is wasn’t that bad, like it didn’t affect me as much as it actually did. Who was I trying to convince, myself?

For some reason I remember a specific time  two years ago when I had admitted out loud for the first time (of what I can recall anyway) about how I don’t want to be sick anymore. I want to live, to do more than just survive. I’m tired. So tired. How can I keep doing this every single day? How can I handle anymore? I just want to be healthy, more than anything. Of course, I never wanted to be sick, and I always wanted my illness to go away, but for some reason I couldn’t say the words out loud before that point.

I used to think that would be a weakness admitting it was all to much, but its not. It made me feel as if a weight had lifted. It had change my perspective, and it helped me find an inner strength I didn’t know I had. It wasn’t till a year and half after that, that I would find what I had always been working towards. I found my path to recovery. The truth I know now is I was never going to be able to handle this on my own, my faith has kept me going, and to not give up hope.

1 John 5:5 Who is it that overcomes the world? Only the one who believes that Jesus is the Son of God.

I have fought the good fight, I have finished the race, I have kept the faith.  2 Timothy 4:7

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This journey has also taught me that the moments of joy you feel are important, even the smallest of moments. You can’t take them for granted.1a2da96d522eaf13d6350f8ff312ea07 The fight has never been easy, but overall with this feeling, this hope, this faith it has been worth it.

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Fix your eyes

 

Psalm 86:11

Teach me Your way, O LORD; I will walk in Your truth; Unite my heart to fear Your name.

 Psalm 73:23-24

Nevertheless I am continually with You; You have taken hold of my right hand. With Your counsel You will guide me, And afterward receive me to glory.

I’m glad I found this song. I really needed to hear this!