New Gifs!

Some gifs about chronic illness, and life…

When you are feeling better, and you try to get back into the world:

tumblr_inline_o66g6btPfj1rclidh_500

What I should say when someone asks me how I’m doing:

tumblr_n26v8il8xf1rns06do2_250

Making progress, but then…..

rcfkMp6qBfPDG

Trying to explain chronic pain to a healthy person:

tumblr_mzsbebd1c11r64iyzo6_250

Advertisements

My Illness and Treatment

I have written about being in recovery, but I have never gone into much detail about what I found out, and what I have done to treat my illness.

Going to a chiropractic neurologist changed my life completely. Before I met him my illness was a extremely debilitating, the pain, and exhaustion were extreme. There was no escape from my illness. I could hardly sit up, my muscles hurt all the time. The pain was always there. My brain felt horrible, it was so heavy it felt liked a bowling bowl, every step I took felt awful. The list of symptoms I had seemed endless. I have been sick for seven years, but those symptoms had been that extreme for over two and half years. I was desperate for some relief.

They symptoms I needed help with the most were undiagnosed. I have had always had a hard time explaining the way my brain felt, other than it feeling heavy, foggy, and horrible. At first appointment with a balance test, and a gaze assessment we were able to find out so much about what was going on.

I will try to explain this the best I can. Here it goes…

The Vestibular System – The vestibular system includes the parts of the inner ear and brain that help control balance and eye movements. If the system is damaged by disease, aging, or injury, vestibular disorders can result.

Your brain is supposed to know where you are in space, and to keep you upright. It is supposed to automatic that your brain is aware of your surroundings.  When things go wrong with your vestibular system it create so many problems.

The vestibular system detects motion of the head in space and in turn generates reflexes that are crucial for our daily activities, such as stabilizing the visual axis (gaze) and maintaining head and body posture.

My vestibular system was broken. Every time I turned my head my brain was receiving the wrong messages. My brain didn’t know where I was in space. My brain would think that I was falling forward, and to stop me from falling my muscles would tense up really bad. My muscles were even tense when I was laying down. This also caused most of my other symptoms I was having. It was the reason for so much of my chronic pain.

Click here for more information about the human balance system, and here for more information about the symptoms of a vestibular disorder.

I also found out that I had Benign Paroxysmal Positional Vertigo (or BPPV).  My brain was dealing with vertigo 24/7. Even if I didn’t feel dizzy at times it was always there. I would get exhausted really quickly, and I have to to lay down. My brain adapted to the situation the best that it could. My brain felt the safest laying down, so it didn’t want me to get up and do much, or even sit up.

Benign Paroxysmal Positional Vertigo (or BPPV) is the most common cause of vertigo, a false sensation of spinning.

Click here for more information about BPPV.

My ability to hold my gaze was also broken. My eyes couldn’t even hold on a non moving target. This is where so much of my energy was being used.

When he told me what was going it started to make sense of how I was feeling. I could never describe what I feeling, and I never knew what going on with it. It was a good feeling to have someone explain to me what was going on, even without me providing a clear description of what was happening. Not having a diagnosis I always wondered

These doctors and their treatments need to be talked about more. Their treatments are amazing, and they can help so many people. I think what amazed me the most about their treatments is how pain less they are, and how little movement really needed to be done for me to feel better.

 Click here for information on Chiropractic Neurologists.

One of the first treatments started out with simple movements of my arms, and legs. I also did a lot of exercises to help BPPV (similar to the one below on the right). Over the next few weeks of this I could tell a big difference, standing, and walking were already becoming easier. My brain was getting better little by little. I also did a lot of eye exercises to help my gaze, and over time also helped me have more energy. I think what amazed me the most about their treatments is how pain less they are, and how little movement really needed to be done to help me to feel better.

I actually saw real progress.

BPPV Figure 2a.

 

Here is a little bit about what Chiropractic neurologists do:

These doctors and their treatments need to be talked about more. Their treatments are amazing, and they can help so many people.

Everything about my experiences with my doctor and treatment is different from anything treatment I have tried before. I actually see real progress, and improvement.

 Click Here to find a Chiropractic neurologist near you.

You can Contact me at heidijones095@yahoo.com or leave a comment here. If you think this could help you or someone you know in any way please, feel free to ask me any questions you may have.

In all the years I have been sick I am now on path I have never been on before. I am on a path of healing and recovery. Before I went to a chiropractic neurologist I was only surviving, now I am beginning to live.

Image

More Gifs!

Friends gifs!

Having old symptoms show up again:

tumblr_myj1ll9JnL1rxam8fo1_250

 

Finally finding some answers to your illness:

tumblr_mzx9ddjXRf1slppseo1_250

 

 Trying to stop your illness from getting out of control can be like:

friends566

 

 

Moment to Moment

 

tumblr_lskbv4xLOz1qdjfgmo1_500

This perfectly describes what I was feeling for so long. The pain always there, everything seemed to make it worse. Everything was a hard. Living in survival mode, only able to think about the step right in front of me. Moment to moment. Changing my whole life to accommodate for the pain and exhaustion. Living in that place for over three years with no escape, it feels like a miracle not to be in that in that same place anymore. I still battle with my illness, but the fight is different. I finally feel free.

You say: “I can’t figure things out”
God says: I will direct your steps

You say: ” I can’t do it”
God says: You can do all things

You say: ” I can’t manage”
God says: I will supply all your needs

 

 

Quote

A journey

I can relate to this so much!

“We become the illness without even realizing it and lose the people we once were – I’m on a journey to try and find that person again – to LIVE in between the flares.” – Unknown

Image

Spoon theory

Life with a chronic illness

The spoon theory is an analogy used by some people with a disability and people with chronic illness to describe their everyday living experience when their disability or illness presents in a reduced amount of energy available for productive tasks.

Running out of spoons so quickly:

tangled-candle-symbolism

 

Needing more spoons:

abccccc

 

Image

Overwhelming fatigue

 

The overwhelming fatigue

Having Chronic Fatigue is more than being tired. The exhaustion can be unbearable. It is overwhelming to feel like this on a regular basis.

when the fatigue is overwhelming:

elena-gilbert-emotions-life-life-quotes-Favim_com-2055101

when the fatigue stops you:

hhjghfdghjkljhgf

When someone asks me what my plans are when my fatigue is really extreme:

student-money-saver-student-flights-holidays

:When I am too tired to get out of the house:

ill-stay-home-and-work-on-my-blog

Having bad days:

654311111111111111111111111111111demi_

Having good days:

tumblr_mi6xnkznB81qelegeo1_250