Trying to keep up

Trying to keep up with a chronic illness

Trying to keep up with someone who is healthy:

  When I think I am doing ok, but my body decides otherwise:

   When I think I can keep going, but my body will not:

Having a Chronic illness

Having a Chronic illness…

Living with a Chronic illness

If I try to ignore my illness

Being completely honest

The pain…

Being exhausted:

Don’t give up

Chronic Fatigue Problems

Chronic Fatigue is usually more like Chronic exhaustion…

Chronic Fatigue problems:

Waking up to early:

Not feeling rested:

When I’m to exhausted to walk around:

When my brain is exhausted:

Quick update!

Just a quick update!

The past few weeks I have continued with my new treatment with my chiropractic neurologist. I am continuing to see some improvements with my brain, and I no longer need cranial adjustments. Which is awesome! 🙂

I no longer feels like my brain is constant survival mode, but I still don’t feel well. My exhaustion has been extremely intense lately, which makes me feel worse. I do not feel rested in the morning, and I don’t have energy as day goes on. The exhaustion is horrible, it makes it hard to do anything. There are still a lot of problems figure out, so I’m mostly just waiting. I’m trying to find a doctor to help figure out what to do about my exhaustion. So for now I guess I’ll continue to make small steps forward!

Seven years

August, 2008 is when I first got sick. Its been seven long years.

Seven years of searching for answers. Seven years of unanswered questions. Seven years of tests, failed treatments, pain, and exhaustion. Seven years of hoping, trying, and waiting for things to get better. Seven years without an official diagnosis. Seven years my illness has gradually gotten worse.

Even though it has been seven years sometimes I feel like not much has changed. I am still looking answers, still having tests done, and still looking for the right people to help me. But I do know that I have changed. I have become stronger, and my illness has taught me so many things, good and bad. I will continue to search, learn, and find ways to feel better.

Proverbs 3:5-6  Trust in the LORD with all your heart, and do not lean on your own understanding.  In all your ways acknowledge him, and he will make straight your paths.

Psalms 27:13-14   I believe that I shall look upon the goodness of the LORD in the land of the living! Wait for the LORD; be strong, and let your heart take courage; wait for the LORD!
Romans 12:12  Rejoice in hope, be patient in tribulation, be constant in prayer.

A step in the right direction!

This past week I have been doing treatments with my new doctor, and I am happy to say that I am making some progress! I am starting to slowly move in the right direction. I am able to sit up for longer periods of time. My brain isn’t quite as heavy at times, and I don’t need adjustments quite as much. In the all the years I have been sick this is probably the first time I have seen a treatment where I actually feel a little better when I walk out the office. Most of my symptoms are still really debilitating, and there are still a lot of problems and symptoms to address. I still have a long way to go, and I don’t know what is ahead of me yet, but seeing these results is good step in the right direction.

Something new

Hi! Its been a little while since my last update. I haven’t really felt like writing much lately. I have had a lot of appointments and treatments lately. Ill make this a short update, and I might try to write more later.

The past few weeks have been very frustrating. Something has to change. Thankfully through a referral I was able find a another doctor.

He is chiropractor neurologist, and we started working on a new treatment.  We have been working on helping my brain function better, and my systems to run normally so they don’t have to work as hard. I have started to see small improvements. Along with my new treatment I still have to have my regular treatments and visits with my functional doctor. Its been hard to jungle both treatments, but I am hoping we will start to see things start to slowly progress.

trying to understand

Trying to explain your illness to other people can be confusing and difficult when your still trying to figure things out, and find answers yourself.

This is usually how I feel when I try to explain my illness to other people:

Good and Bad

This week has been filled with few changes. Some good, and some really bad.

At the beginning of the week my cranials were a bit more stable, and and my neck pain was a little less than normal. My cerebral spinal fluid was running better. I still have to go to appointments and treatments, but it is definitely good change. I was also fortunate enough to be able to get a laser I can keep at my house, and that has helped with some of the pain.

Even though my pain has been a little better I have been feeling more weak and exhausted than usual. I have not been feeling rested at all. My brain is still extremely heavy and tired. My lymphatic system runs slower than usual. My legs are very heavy, weak, and exhausted. I am too exhausted to sit up for no more than a few minutes.

The longer my exhaustion goes on like this the more unstable my cranials, brain, and the rest of my body starts to become. Everything functions even slower than normal.

I guess for I have to focus on one problem at a time. I’m hoping I will start to see more good changes soon.

Going in Circles

 Facing challenges everyday is hard to deal with. Being sick everyday definitely takes a toll mentally, emotionally, and of course physically. Having a lot of symptoms that are debilitating and unpredictable are hard to handle every single day. Sometimes its hard to wrap my mind around the fact that this is my current reality at nineteen years old. I can never let my gaurd down with my symptoms, not even for a few hours there to severe to ignore.

Where do I go from here?

How do I move forward when it feels like I’m always going in circles. Nothing about this journey has been easy, but this feels so out of control. I have to take one day at a time, but I want more than this. Now I have to figure out how to get there.

 

“So don’t worry about tomorrow, for tomorrow will bring its own worries. Today’s trouble is enough for today. Matthew 6:34

Romans 15:13  May the God of hope fill you with all joy and peace in believing, so that by the power of the Holy Spirit you may abound in hope.